First Consultation And Diagnosis With The Neurologist

Consultation With The Neurologist - Chest X-Ray - CT Scan

With the dentist and optician results known, luckily all within three days of seeing the doctor, I went back to the doctor who then wrote a 'letter of referral' to a neurologist at King's College hospital (London) after given me a prescription for pain killers (Amitriptyline and Paracetamol With Co-Codamol). A week or so later I received an appointment to see a neurologist, Mr Yee Mah, for 8th February 2018. Almost 5 months away.

To my surprise, one week later I received a letter from the neurology department at King's College hospital (London) stating my appointment had been cancelled and rescheduled for 12th October 2017. Now only a month away. Although this was great news, I do not know why this happened. I had indirectly jumped the queue, but for what reason? Did the neurologist think my case was more urgent? And if so, why?

The Consultation With THE NEUROLOGIST

When I was called into the neurologist office, on 12th October, he began by asking me many questions about my problems, listening carefully and taking notes, while also carrying out simple eye, throat and stomach diagnostic tests.

After this initial consultation, he then requested an immediate blood test and chest x-ray to determine if an infection was responsible for my problems before sending me home with a prescription for Tramadol (a strong pain killer / controlled drug) for the severe headaches, cheek bone pains and teethaches I had been suffering so far. He did not want to give me any medication he felt would cure my problems until he got all the results back of course. I was just grateful I had something stronger than paracetamol to stop my aches and pains.

I did ask the neurologist before I left his office why my appointment had been moved forward, indirectly jumping the queue, and he said it was because he did not feel it right that someone should be suffering from eye disorders. This move of appointment was crucial in the end, as it literally saved (or at least prolonged) my life. As you will discover later, timing is of the essence when diagnosing cancer (tumors / tissue growths).

NOTE: I was asked if I wouldn't mind being tested for HIV and other sexual diseases, just to rule out those as possible causes for my problems; which I agreed to have done. All results came back negative. The HIV test for example is tested for in case it is the cause of a low immune system.

NOTE: As the NHS has a policy of sending you and your doctor a copy of their findings, you need to ask your neurologist not to send out such sensitive information (findings) to your address and/or doctor's surgery; especially if you share a house with nosy tennants (who may, accidentally, open your letters) or do not wish your doctor to know of your condition(s) for whatever reason(s).

Surprise Call From THE NEUROLOGIST

Approximately three hours after leaving the hospital I got a call from the neurologist asking if I could return to the hospital and book myself into the A & E department where they would then give me a CT scan that night and possibly a MRI scan the following morning based on the results of the CT scan.

A CT scan is basically a process where ink is injected inside your head, usually via your arm, so that a machine can then see (scan/photograph) an image of the nerves (blood vessels) around your brain and face (cheeks and nose). It is used to identify blood clots among other things, which is what they were looking for in my case.

The Findings Of MY CT SCAN

The CT scan did not find any blood clots or varicose veins in my case but did find a big growth of unknown tissue around my nose, forehead and at the back of my right eye. The neurologist later explained the lump under my right eye (under its skin) as being 3.0cm across, hence the severe pains in and around my face.

CT Scan

The CT Scan shows tissue growth around the nose and right eye

The results from my ct scan prompted the on-duty neurologist at King's College hospital, who accompanied me throughout the whole CT scan process, to make an appointment with the ENT (Ear, Nose & Throat) department at Guy's hospital (London). To my surprise I received a call from that ENT department the next day to confirm an appointment for the following Friday (20th October).

If you look at the CT Scan, you will notice my right eye is sticking out from my left eye. That is what was (and currently still is) causing my double vision and disorientation problems.